Dr's appt. last week was as good as all of them....still tolerating chemo perfectly; vital signs and blood work are exactly normal or better. That's good, and as long as the chemo remains effective I'm in "pretty good" shape.
But...even mild symptoms (sore mouth irritated when I eat and some kind of "catch" that makes big hiccups when I eat, but goes away quickly) get to be very irritating when one is looking at it as something that's always going to be there. They can't kill this cancer, so what I'm going through now is about the best I can expect. Well, I'll be alive a while....
But my energy level is up and down on a daily basis. I've learned that I can't plan anything. I can feel really good at night looking forward to a trip the next morning, only to wake up feeling very, very lethargic. So..I've learned not to make any plans or commitments - everything's gotta be on a day to day basis.
Well...guess it's better than being dead?
There is some hope, though. My oncologist has suspended one of the chemos I'm getting, Cisplaten, for the summer & thinks the other one, 5fu, will keep the tumors shrunk to the tiny size they are now. With any luck, getting an extended break from cisplatin will help me get my energy back. We'll see...
Disclaimer - I make no representation that I spelled cisplatin correctly! 5fu easy on to spell!